It’s all been a bit rubbish since I last managed to post. Been suffering really bad with the fatigue, needing to sleep loads. Muscle jerks have gone from bad to worse, really shaking and all at once too. Been happening at night too while I’m asleep, they’ve been waking Paul up. Neck and head ones have gone worse too, can’t control them. seeing the dr on Wednesday to see about increasing baclofen.
Saturday I had a really bad migraine after a week of constant niggly headaches and feeling generally drained. I woke up with it hurting but nothing more than it had been all week but this time the tablets didn’t help or the head stick. Carried on as best I could, took Bailey to watch his Daddy playing in the town with his band for an hour and then we went to the park so Bailey could show me how his bike riding that he’s been doing at school had come on. Took more paracetamol while we were watching the band but they did nothing then half an hour after we’d been at the park I knew I need to get home quick. We came home, I rang Paul asking him to come for Bay as soon as he could to go to the bbq and I shut the curtains and cuddled up on the sofa and shut my eyes, hoping it would go away.
Then just as Paul came home the inevitable happened and I was sick. Felt really bad, hate Bailey having to see me that poorly. Paul got Bay ready to go and told me to go to bed but was sick again before I could get there. Then began 12 hours of agonising pain and me being sick. My head wouldn’t stop thumping and I kept going from hot and dripping wet to shivering within minutes of each other, not able to get comfortable, every movement forcing another run to the bathroom. I tried to take my evening tablets but was sick within minutes so they did no good.
Hardly slept cos of the pain in my head and everything else hurting too but when I did drop off I kept having really weird nightmares – was like all the tv shows I watch all rolled together with me and everyone I know there too. Then there was all different pod world things that people kept being sent too and getting separated. But then they became where you had to stay and you couldn’t get home. Was really horrible and didn’t help with the sickness.
Sunday morning came and migraine pretty much gone but legs were agony, arms were agony, energy levels were rock bottom, non existent might be more accurate. Dragged myself out of bed about 10am cos it was Paul’s big day with his first proper public performance and we’d been looking forward to it for days. Nothing was going to stop me going. Knew my lift was coming just after one so my goal was to be ready, and able to move by then. Well, that was easier said than done. The sweat was pouring off me, and energy wasn’t improving. It ended up taking me 2 hrs to get showered and dressed cos I just needed to lie down. Could’ve slept for england! Finally we got to the carnival almost on time and it took all I had to drag my legs the short distance from the gate to the marquee where the band were. Never been so pleased to see a chair. As the afternoon went on I started to feel more normal for me, my legs became easier, less pain and lighter to move. Had a really good time. Then it was just the fatigue afterwards, complete exhaustion.
Then the cause of all the excess pain and probs over the last week or more finally arrived and the stomach cramps kicked in good and proper. Spent the rest of last night sat boiling hot but with a hot water bottle on my stomach trying to stop it hurting.
Today things seem easier except for the fatigue – had to spend the morning sleeping yet again. Not sure if it’s the tablets causing it to be so bad so going to try to slightly lower the dose tonight and see if it makes a difference. Gonna be a balancing act between less fatigue and tiredness and increasing pain levels. Just need to find the right balance.
Here’s hoping things start to improve a bit now the dreaded P has finally arrived properly and moved on from the torment stage it seems to like to do.
mydaywithfibro 